May 25, 2013

I am who I am

I’ve read so much about search engine optimization, branding, and appearing to be something that you are not over the last year that quite honestly it makes me as nauseated as I was back in the 70’s with my chemo regimen for Ewing’s Sarcoma. The fact is, I am who I am.

I am me.

I am a petite mess of cute chaos with just enough tabasco to pack a powerful punch and I will always be me. This means that I strive not to live my life seeking to be what I think everyone else wants me to be rather I seek to live who I am and who I am becoming.

I don’t know how to be anyone except myself; I don’t know how to do anything except that which I was created to do; I refuse to be consumed with how I am perceived by others, wondering if the reality of what I am facing personally is in some way visible to the watching world.

Would it be SO terrible if our readers or followers caught glimpses of our brokenness? ¬†I don’t think so. In fact, I believe it would help them to know that they are not alone and they need not live their lives from a place of shame.

I’ve been cautioned by our ‘handlers’ that Judy and I need to be careful as MHYH can not be about us self-promoting ourselves. We have to make our cause universal; however, I’ve also been told that the passion for our cause comes from our lived experience as it is something that everyone can identify: CANCER. Talk about schizophrenia or borderline personality disorder?!

SERIOUSLY: is there anyone who has not been touched by cancer either personally or through a loved one? Does that not make Late Effects of Cancer Treatment universal in nature?

MHYH’s blog is a platform for us to put flesh on the bones of late effects. Late effects is NOT at all about us rather it is about every cancer survivor out there; therefore, we will write from our hearts and continue to build online relationships as we would in real life.

You must understand that we are not selling a product rather we are giving our lives into the hands of others for their ultimate benefit. The prayer of our heart is that hearts will be spared because we were obedient to the call on our lives to raise awareness regarding the late effects of cancer treatment on future health and wellbeing. Ours is a CAUSE not a PRODUCT; ours holds the potential to SAVE LIVES; ours is NOT a luxury item rather it is a SCARCE resource.

Urgency, oh yes, there is an enormous sense of urgency on our hearts. I can not tell you how many doses of doxorubicin I have pushed or hung or ordered according to protocol guidelines; I lost my own heart to doxorubicin and co-founder, Judy Bode, is losing hers to the invisible therapy known as radiation.

myHeart, yourHands was founded to educate and equip survivors regarding potential late effects of cancer treatment, especially heart failure. It is our combined life experience that sparked our passion. Using our lives to the benefit of others.

Not only does MHYH want lives to be spared by cancer, but we also want late effects of cancer treatment to become a thing of the past.

As long as there is life and breath in me, I will work to this end.

When you look into the social media mirror, is it you or someone you’ve created?

1 Comment

  1. Rich Wevers

    May 26, 2013 at 11:48 am — Reply

    Thanks, Stephanie, for your passion for the cause you and Judy, through MHYH, embrace. You both know so thoroughly, so chronically, so deeply, what the long time effects of cancer treatment are.
    She doesn’t have the energy to respond and be the active participant you can be and be so well. Thanks for all you do. You write with all the characteristics of one whose passion is clear, and whose talent for writing is equally clear. The cause you work for means so much for Judy and for us her parents. Every day it gives her something to think about, to watch, and for whose success and benefits she can hope for, as she and we every day hope for her new heart.

    Rich and Sylvia Wevers, parents of Judy (Wevers) Bode

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