I’ve been looking high and low for a compilation of the recommended long term follow up of adult survivors of adult cancers because myHeart, yourHands (MHYH) is NOT just about survivors of childhood cancers. Sadly, I have been disappointed to find that the late effects and monitoring for late effects is light years behind the pediatric world.
I would love to be able to provide our adult survivors with a comprehensive resource like I did in my last post for survivors of childhood cancers, but I can not. I have found the adult world lacking in this area. Oh, there are guidelines categorized according to disease, but these guidelines are vague and not altogether useful. The data on late effects of adult cancer and its treatment simply is not there: YET.
I have invited one of the most brilliant minds I have ever encountered to guest post on the state of late effects in the adult world and WHY highlighting the differences that exist between the two worlds. Who is this brilliant individual? Ann Mertens, PhD Division of Hematology/Oncology, Department of Pediatrics at Emory University School of Medicine is THE individual of whom I speak.
I am electing to hold on posting anything related to adult survivorship and monitoring for late effects of cancer treatment until Dr. Mertens post has been posted in the Doctor’s IN. Once we’ve all had the opportunity to digest the content she presents, then we will dig into what’s out there from the American Society of Clinical Oncology.
In the meantime, I would recommend the childhood cancer survivorship guidelines discussed <<here>> as a guide for your long term follow up care. More to come in the weeks before us…Tweet